News about Fibromyalgia.... ...... ....... Okay it's not like cancer research or pretty much anything else... nothing new. *sigh* The last big thing was something I believe I mentioned already about should have a Neurologist & Rheumatologist (spelling?) working in tandem. I don't see my Neurologist until March to tell him. Still, will it make a difference? They both have permission to send notes to each other already. If anyone knows anything else new about Fibromyalgia they might have heard in passing, on the news, etc... please let me know!!
Shrink this!... Okay found a new Psychologist. I think she will be much better than the last. She is closer... in Hampstead vs Portsmouth, so about 10 miles closer. Found out there is a name for what I am going through...actually WE (Garrick & I) are going through. Basically "Adjustment". It's when something, like illness, effect a marriage and both parties need to, well, adjust to it. I got a homework assignment out of it. When someone says something to me that upsets me, I need to write it down and write how I am feeling at the time of it. Garrick doesn't have any homework.
Princess & the Pea... One of the problems I have with my FM is achiness. When I go to bed, I have to make sure there are no wrinkles in the sheets below my back, AND I have to make sure my top is pulled all the way down to. Silly right? But I have to or the wrinkles from either can cause back pain that can last the whole next day. I call it Princess & the Pea Syndrome because I bet the FM has made me so sensitive, I could pass that test with 100 mattresses and one tiny pea hidden in them... SERIOUSLY!
So what do you think? Also I wanted to ask everyone if they know anyone with Fibromyalgia or have it themselves. Apparently this is one of the syndromes on the rise AND may soldiers who have PTSD, who don't get enough help, their PTSD can become Fibromyalgia. Sick, right? Talk to me! Let me know what you think of my blog. What can I do to improve it? I want to know! I believe you can leave messages on here without following, but...why don't you follow me? :)
Christy
Friday, October 26, 2012
Thursday, September 27, 2012
Just Thinkin'....
So, I have new boobs....er....less boobs. They have taken a bit longer to heal than the first impression I got from my doctor. I was worried for awhile because I had a section under my left that re-opened and looked like it was infected (probably was, but looked worse than they said it was). I have to admit, this summer my stress levels were an all time high because under everything, I was so scared. There. I said it. I can't say how many times a doctor took my pulse. I usually have a very low pulse rate, but this summer it was as high as normal can get.
I loss 3 pounds of flesh, yet I'm now @ 7-10 pounds heavier. We know why, it's because for around 2 1/2 months I was not allowed to do much of anything except sit on the couch and watch TV. Funny thing is that I didn't munch like I thought I would. I was so sure when things seemed to go wrong, all I would do is eat, but I didn't. And knowing this, we know that it was the lack of movement that caused it. The hope is eventually I can start doing my stretches and core stuff that maybe I can loose it, or at least not gain more.
I don't want to go back to PT because it's so hard to keep the schedule. I never know when I will have another migraine, or FM attack, or even not able to sleep the night before. Any and all of these can cause me to have blurred vision or the sensation of "medicine head". When this happens I can't drive.
So, let me try to get positive here, for things aren't too bad. I have been having really odd problems lately.... comes to find out since my operation my iron has been really low. I happened to be going to a Hematologist, because my platelets were high (apparently that happens with FM...who knew?). When she did my tests she was the one who noticed my iron levels. She didn't mention it the first time I saw her because it was still in the normal range. The next month she said it didn't raise much, and that worried her. Most likely this was a result of my operation, so I take liquid iron every other day. I have had my blood, urine, and body checked while I started taking iron. They couldn't find what was wrong, put me on a mood stabilizer thinking it was the stress of the summer, I got really sick from the new med so stopped it, and then.....2 weeks after starting the iron.... less tired, less headaches, less dizzy spells, and most important....TODAY I GOT CHORES DONE! Not Garrick, ME!
It's like, I feel I'm starting to go up the hill, instead of falling down it. Now, I'm not running up it, but climbing up....slowly....
I loss 3 pounds of flesh, yet I'm now @ 7-10 pounds heavier. We know why, it's because for around 2 1/2 months I was not allowed to do much of anything except sit on the couch and watch TV. Funny thing is that I didn't munch like I thought I would. I was so sure when things seemed to go wrong, all I would do is eat, but I didn't. And knowing this, we know that it was the lack of movement that caused it. The hope is eventually I can start doing my stretches and core stuff that maybe I can loose it, or at least not gain more.
I don't want to go back to PT because it's so hard to keep the schedule. I never know when I will have another migraine, or FM attack, or even not able to sleep the night before. Any and all of these can cause me to have blurred vision or the sensation of "medicine head". When this happens I can't drive.
So, let me try to get positive here, for things aren't too bad. I have been having really odd problems lately.... comes to find out since my operation my iron has been really low. I happened to be going to a Hematologist, because my platelets were high (apparently that happens with FM...who knew?). When she did my tests she was the one who noticed my iron levels. She didn't mention it the first time I saw her because it was still in the normal range. The next month she said it didn't raise much, and that worried her. Most likely this was a result of my operation, so I take liquid iron every other day. I have had my blood, urine, and body checked while I started taking iron. They couldn't find what was wrong, put me on a mood stabilizer thinking it was the stress of the summer, I got really sick from the new med so stopped it, and then.....2 weeks after starting the iron.... less tired, less headaches, less dizzy spells, and most important....TODAY I GOT CHORES DONE! Not Garrick, ME!
It's like, I feel I'm starting to go up the hill, instead of falling down it. Now, I'm not running up it, but climbing up....slowly....
Thursday, June 21, 2012
Boobs!
All highlighted are from Facebook, if you already read those, skip down to under the highlighted...
June 11: I had Breast reduction surgery on the 11th. They said I would have 5-7 days of pain.
June 11: I had Breast reduction surgery on the 11th. They said I would have 5-7 days of pain.
June 12: Well its morning now. Still sore,I know...duh. saw the doctor this morning, she is impressed with how I am doing. Not sure when I am, getting discharged. But she said she was able to make me a perfect size B.
June 13: Had it rough tonight.
June 14: Last night went to the emergency room for severe pains...found out I was getting pectoral muscle spasms. Nice. Today I get the drains removed. Hopefully that makes me more comfy.
June 16: Drains are gone (yes!). Stitches are coming out Monday afternoon, not sure if all of them are coming out...but since they itch, any will be good! Still need the pain pills, when I try to ween, I feel lots of pain. But I am down to one pill every five hours.
June 18: Was able do celebrate Father's Day with both Dads. Sore....ended up with a terrible headache, but was worth it! Hoping to get some sleep this morning....and hoping the pain pill kicks in soon. This afternoon at least some of the stitches out.
June 20 (morning): Stitches out. Still have pain, but not nearly as much as before. No more antibiotics! Next visit to the doctor is next thursday. She will be checking my progress. Nurse thinks in 2 weeks I will be out od the blood clot danger, so I will be able to take all my meds again...on which my head will be grateful. I must be doing better because my insomia has come back (is that a yay or boo?). Its been a week and a half...and no visitors. :( Its just been me and my Sims.
Today: Yesterday afternoon (after being in severe pain all afternoon) broke down and called the doctor. As most who know me know that I don't do well with blood...especially my own. The pain was getting really bad, so I checked the bandages. Now Garrick has been the one taking care of them and when he did I would stare at the ceiling. I checked the bandages and there was blood. So I called and she told me it was okay... to put more ice on it because she thought it was the heat (95 F weather) that was effecting it. I started to feel better, but I can't help but remember she said the pain was going to be 5-7 days.. then soreness for 2-3 weeks after. It's been longer than that.. and sometimes the soreness is down right pain. Garrick said to be patient (yeah) and to remember I only had the surgery 1 1/2 weeks ago. I hope I start to feel better.
The whole reason for this is because it can improve almost everything that is wrong with me. I can actually look down and see... my belly :( I can't wait until I can start to do my stretches again (the steps to actually be able to exercise without pain). Anyway I will try and put updates here from now on and not on Facebook.
Any questions, commits or concerns.... leave a feedback here for me and/or start to follow me. Christy
Wednesday, February 8, 2012
New Ruts
New Ruts? This is what my homework assignment is:
"A farmer goes out to check on his fields. There are heavy ruts when he takes the horses out with his wagon. The horses have been going the same way so long, they know to follow the ruts and the farmer doesn't have to do much, in fact he could sleep on the way and as long as he holds onto the reins, he will make it to the fields without trying. One day, the farmer noticed those fields were too worn and not very fruitful. On that day, he decided to go to the fields on the other side of his home. The road there was not used much and didn't have the ruts like the other, for this reason the horses were confused. The farmer had to be alert and make sure that he took control with the reins or the horses might veer off the road. After using this road to these fields the road began to have ruts like the other fields and it got easier and easier for the farmer."
So... I need to make new ruts. I also need feedback from my friends. Have you been this situation, where you need to change something to make you a better person? Health or otherwise? Were there problems? Stumbling points? What was easy? Those of you who see me, what do you think? Do I look tired? When I walk am I slouching? etc.
Well since I saw the doctor 1 1/2 weeks ago, I had one breakdown when I couldn't sleep one night. I was very tired, but couldn't sleep. We (Garrick & I) think it was because we were working on a budget that evening, and I don't do well when we discuss money. I had that again last night, but I was able to keep my mind off of "stuff" and even though I was tired, I didn't breakdown. (YAY) Also, today I got my stretches & exercises done. I started with warming up my legs, knees, etc with the 2 "dance" exercises on Wii Fit. I worked for an hour. A little sore around my bad hip, but not too bad.
Hopefully I'm on the right track.
"A farmer goes out to check on his fields. There are heavy ruts when he takes the horses out with his wagon. The horses have been going the same way so long, they know to follow the ruts and the farmer doesn't have to do much, in fact he could sleep on the way and as long as he holds onto the reins, he will make it to the fields without trying. One day, the farmer noticed those fields were too worn and not very fruitful. On that day, he decided to go to the fields on the other side of his home. The road there was not used much and didn't have the ruts like the other, for this reason the horses were confused. The farmer had to be alert and make sure that he took control with the reins or the horses might veer off the road. After using this road to these fields the road began to have ruts like the other fields and it got easier and easier for the farmer."
So... I need to make new ruts. I also need feedback from my friends. Have you been this situation, where you need to change something to make you a better person? Health or otherwise? Were there problems? Stumbling points? What was easy? Those of you who see me, what do you think? Do I look tired? When I walk am I slouching? etc.
Well since I saw the doctor 1 1/2 weeks ago, I had one breakdown when I couldn't sleep one night. I was very tired, but couldn't sleep. We (Garrick & I) think it was because we were working on a budget that evening, and I don't do well when we discuss money. I had that again last night, but I was able to keep my mind off of "stuff" and even though I was tired, I didn't breakdown. (YAY) Also, today I got my stretches & exercises done. I started with warming up my legs, knees, etc with the 2 "dance" exercises on Wii Fit. I worked for an hour. A little sore around my bad hip, but not too bad.
Hopefully I'm on the right track.
Tuesday, January 31, 2012
There have been some changes!....
Okay, well I think I need to go back on Cymbalta. I didn't think it was working with my Osteoarthritis.... but I am pretty sure I was wrong. Even though the medication that I replace it with, generic Effexor, works just as good for my headaches as the Cymbalta, my hip & knee have been insane!! Yeah, it could be the cold, it could be other factors...but usually I have good days and I think I feel some level of pain with my hip and/or knee everyday now. So when I am done with this bottle (don't want to waste), I think I will change back.
I don't remember if I mentioned this before, I started having stomach problems off/on, it got so bad that I made an appointment with my Gastro, Dr. Tompkins, and she couldn't see me until... THE END OF FEBRUARY??? After I made that appointment, I had an experience that felt like someone grabbed my stomach and squeezed. I called my regular doctor, Ellen, and she saw me the following day. I didn't sleep well so Garrick took the day off and drove me there. After alot of back & forth between us and Ellen, she realized that I definitely had IBS (Irritable Bowel Syndrome). We used to think it was a side effect of my FMS (Fibromyalgia) , meaning I could have episodes. Now I know that there is no episodes, I always have it. What we did was switch my probiotics from Acidophilus to Aline. That seems to work. I have stopped drinking carbonated drinks at home, so I can have one if I go out. Real sweets, like chocolates or pure sugar candies, upset my stomach too. But I still can have less sweet stuff like cookies & pudding... it's a fair trade off, I guess.
The last change, I will mention is.... I got me a Psychologist. This is recommend for those who have multiple health issues, to help manage it all. Nathan recommended that I get one that does Biofeed Back or Cognitive Behavioral Therapy (CBT). I found one in Portsmouth, she does CBT (I couldn't find one local that does Biofeed Back). I have seen her only once, but I already have homework. Here is the homework: Think about how to change my thinking... i.e. how to get rid of stinkin' thinkin'. We decided to use my blog (yes, this thing) for me to discuss my homework. She is hoping that I get some feedback that I can bring to her that might help me down the road, so if you are one of those who read my blog but don't comment, please think about commenting for me. (Thank you). So...
Homework: I need to change my thinking when I have a few days in a row of not feeling well, I need to stop thinking about how horrible my life is stuck inside, but look forward to getting out. I need to stop worrying about the little pain I feel that might prevent me from exercising because I'm afraid of making the pain worse. I need to instead say to myself "I can get my overall pain down if I exercise more" and try to exercise at least a little bit anyway knowing it might make my pain worse, BUT it might make it better or not effect it at all. What do you think?
I don't remember if I mentioned this before, I started having stomach problems off/on, it got so bad that I made an appointment with my Gastro, Dr. Tompkins, and she couldn't see me until... THE END OF FEBRUARY??? After I made that appointment, I had an experience that felt like someone grabbed my stomach and squeezed. I called my regular doctor, Ellen, and she saw me the following day. I didn't sleep well so Garrick took the day off and drove me there. After alot of back & forth between us and Ellen, she realized that I definitely had IBS (Irritable Bowel Syndrome). We used to think it was a side effect of my FMS (Fibromyalgia) , meaning I could have episodes. Now I know that there is no episodes, I always have it. What we did was switch my probiotics from Acidophilus to Aline. That seems to work. I have stopped drinking carbonated drinks at home, so I can have one if I go out. Real sweets, like chocolates or pure sugar candies, upset my stomach too. But I still can have less sweet stuff like cookies & pudding... it's a fair trade off, I guess.
The last change, I will mention is.... I got me a Psychologist. This is recommend for those who have multiple health issues, to help manage it all. Nathan recommended that I get one that does Biofeed Back or Cognitive Behavioral Therapy (CBT). I found one in Portsmouth, she does CBT (I couldn't find one local that does Biofeed Back). I have seen her only once, but I already have homework. Here is the homework: Think about how to change my thinking... i.e. how to get rid of stinkin' thinkin'. We decided to use my blog (yes, this thing) for me to discuss my homework. She is hoping that I get some feedback that I can bring to her that might help me down the road, so if you are one of those who read my blog but don't comment, please think about commenting for me. (Thank you). So...
Homework: I need to change my thinking when I have a few days in a row of not feeling well, I need to stop thinking about how horrible my life is stuck inside, but look forward to getting out. I need to stop worrying about the little pain I feel that might prevent me from exercising because I'm afraid of making the pain worse. I need to instead say to myself "I can get my overall pain down if I exercise more" and try to exercise at least a little bit anyway knowing it might make my pain worse, BUT it might make it better or not effect it at all. What do you think?
Monday, January 2, 2012
Holidays, they come, they go.
How is everyone? New day... New year! Christmas was great! We spent the Sunday before with my sister Nellie & her family, an evening with Garrick's brother Gavin & his family. Christmas Eve with Garrick's parents & his brother Ian, and Christmas Day with my family.
I got great loots this year! I got the first 3 seasons of Barney Miller, Sims3, Seasons 3 & 4 of Big Bang Theory, some bath items, (thanks to the check from my parents) the kit to be part of the Genome Project of NatGeo, new slippers, monies to go toward a new cabinet/counter for the kitchen, & a gift card from Barnes & Noble. Awesome! Also, most important, very good days for the holidays!
A couple days after Christmas, Garrick & I met up with my cousin Andrew, who I haven't seen in a long time. It was awesome to catch up. Before we left the area we saw my Uncle Peter & Aunt Molly. It was so nice to see them again too.
Between Christmas, and until after New Year's we had my friend Melinda staying with us. She was recovering from surgery (and doing just fine). All of us (including Jolene) went to my friend Angelo's New Years Eve party & was surprised to see my sister Kathy & my niece Jenna. We had a great time playing board games into the new year!
To be honest, with Melinda, it was great having her here keeping me company. But, my back & hip are feeling it. Quite sore from driving around these few days. I now have a day of rest (if you call that) tomorrow. Wednesday I have a Spinal Tap for my headaches. This will determine if my headaches are caused by pressure in the brain from too much spinal fluid. Nathan, my PA, thinks this might be the most important test I will get done for my headaches. We will see.
I got great loots this year! I got the first 3 seasons of Barney Miller, Sims3, Seasons 3 & 4 of Big Bang Theory, some bath items, (thanks to the check from my parents) the kit to be part of the Genome Project of NatGeo, new slippers, monies to go toward a new cabinet/counter for the kitchen, & a gift card from Barnes & Noble. Awesome! Also, most important, very good days for the holidays!
A couple days after Christmas, Garrick & I met up with my cousin Andrew, who I haven't seen in a long time. It was awesome to catch up. Before we left the area we saw my Uncle Peter & Aunt Molly. It was so nice to see them again too.
Between Christmas, and until after New Year's we had my friend Melinda staying with us. She was recovering from surgery (and doing just fine). All of us (including Jolene) went to my friend Angelo's New Years Eve party & was surprised to see my sister Kathy & my niece Jenna. We had a great time playing board games into the new year!
To be honest, with Melinda, it was great having her here keeping me company. But, my back & hip are feeling it. Quite sore from driving around these few days. I now have a day of rest (if you call that) tomorrow. Wednesday I have a Spinal Tap for my headaches. This will determine if my headaches are caused by pressure in the brain from too much spinal fluid. Nathan, my PA, thinks this might be the most important test I will get done for my headaches. We will see.
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